Creating a FACETS digital toolkit to promote quality of life of people with multiple sclerosis: Unsupervised Usability Testing (Phase 3)
Invitation to take part in digital toolkit testing:
Ethics ID: 24569
What the study is all about
A research team at Bournemouth University would like to invite you to help us to develop and refine a digital toolkit to support people with multiple sclerosis (MS) to monitor and manage aspects of their fatigue. Work on the toolkit has begun, with the second working version now ready for testing. We’d like to invite you to participate in the testing.
Can I take part?
We would like to invite people who have a medically confirmed diagnosis of multiple sclerosis, are 18 years or older,experience fatigue that impacts on daily life and use an Android Smartphone. Though currently only available for Android, Apple mobile phone users can register an interest in testing an iOS version when it becomes available.
Due to space limitations, only the first 100 registrations can be accepted, at which point the registration system will be closed.
What will happen if I take part?
- You’ll be asked to provide a valid email address which will allow you to download a free prototype of the digital toolkit from the Google Play Store to your Android smartphone via a supplied link.
- After trying out the toolkit, you’ll be asked to complete an online questionnaire about your experience of using it.
- We’ll also ask you to provide some information about yourself such as your age, the type of MS you have, how long ago you were diagnosed with MS and how it affects you. This will help us work out how we can make sure the toolkit is appropriate for a wide range of people.
- In the online questionnaire we will also ask you to indicate whether you would be willing to provide further feedback via a short follow-up telephone interview with the researcher.
Research during the Coronavirus outbreak
In view of the current coronavirus outbreak, we have consulted with both our Clinical Governance Advisor and Ethics panel chair to ensure that carrying on with this research is acceptable, safe and in the best interests of people with MS.
The toolkit includes tools to record fatigue levels and other symptoms, log activities and thoughts, and set goals. For some people trying out the app may provide a welcome distraction but for others we fully understand it may not be the right time to participate in this study.
Please take time to decide whether or not to take part and remember that if you agree to take part you can stop participating at any time without needing to give any reason.
I’m interested in taking part - what do I do next?
If you’re interestedin finding out more and/or being involved then please visit this https://bournemouth.onlinesurveys.ac.uk/facets-toolkit-prereg or email the research team at Bournemouth University who will be able to help with any queries you might have.
Dr Andy Pulman
Post Doctoral Researcher in Digital Health and User Experience
BUCRU (Bournemouth University Clinical Research Unit)